On travelling with chronic fatigue

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Hi friends. Sorry for missing the last two days! My fatigue was super bad so I spent most of my time in bed or dragging my unwilling body to meetings.

But I am back! And feeling better. And I have good news and three days’ worth of stuff to catch you up on. Please excuse the weird format that follows, but I think it’ll be the best way to structure this one. Skip to today’s post (Friday 16th) if you wanna get to the happy bits, and ignore the last section if you’re bored or not keen on hearing me ramble on about chronic illness.

Tuesday 13th November

I woke up at 8am absolutely wrecked after the London reception the night before, so I went back to sleep until lunch time and then had a quick shower before heading off to my meeting. I spoke with Dr Steven Connor of CRASSH (Centre for Research in the Arts, Social Sciences and Humanities) at Cambridge. He was lovely, and we had a good chat about academia in general and the changing structure of the Humanities at Cambridge.

After my meeting I walked through a little park behind Queen’s College and around the corner to Clare Hall, where we had a group session on applying for Cambridge.

To be honest, it was not a good time. It is likely that that was due to my fatigue-induced bad mood. I left partway through because I was so tired I was sure I was going to either burst out crying or throw up all over the table.

I stopped by a café on the way home to grab a sandwich and some snacks for the evening, because I knew from the headache coming on that I wouldn’t be capable of going out to fetch dinner later on. I ate my ham and cheese toastie and skulled my coffee, then fell asleep for four hours. I woke up briefly to eat a muffin and finish the last little bit of Leviathan Wakes, then I went back to sleep until morning.

Wednesday 14th November

Wednesday was another tough day. I made it out for lunch with Gemma (my first meal of the day) and she very kindly relieved me of my washing so that I could go back to sleep.

I had a shower at some point, and drying my hair left me so exhausted that I had to sit on the ground in the bathroom for ten minutes before I could walk the short distance back to bed.

In the evening I took a taxi over to Anglia Ruskin University for their open night, and I’m so so glad I went. I met Dr Tiffani Angus and Dr Helen Marshall from Creative Writing, and they were both amazing. We talked on and on and I felt so at home in their company that I could have stayed there for hours.

Afterwards I stopped by the group dinner briefly to eat a little bit, then started feeling ill and fatigued again so took a taxi the short distance home. I slept for twelve hours overnight, on top of the however-many-hours I’d already spent napping.

Thursday 15th November

Today was better. I had a meeting with Dr Una McCormack from Anglia Ruskin this morning at Fitzbillies down the road, and it was so good. The meeting concluded with us agreeing that I would apply for the PhD program in Creative Writing with (probably) Tiffani as my main supervisor and either Una or Helen as a secondary supervisor.

Oh my gosh. I am so ridiculously excited.

All the other universities have been so amazing, and all the academics I’ve spoken to have been super welcoming and supportive, but I think this is the one.

Even at Stanford and Harvard, which I was so impressed with, I would have had to squish my research into their framework. But here, I can 100% do the work that I want to do. And these three ladies are fabulous, and accomplished, and a joy to chat to.

We ended up talking for over an hour, and finished up just in time for me to take a taxi to the bus stop. I met one of the mentors and two of the other Scholars there, and we hopped on the bus to Oxford!

I sat next to a lovely lady called Susie on the bus (the third Susie in my life, all of them lovely) and we chatted the whole way. We’ve swapped contact details and will be sending each other postcards once I’m back in Perth!

We’re now in Oxford, where I have no academic meetings. So this week I’m going to be a tourist, and rest as much as I need to. It will be a nice end to the trip, I think. In eight days I’ll be home!

Chronic fatigue ramblings

Okay, so here’s the thing. Chronic fatigue sucks. And experiencing a bout of fatigue while travelling on the other side of the world, so so far from home and my support systems, sucks big time.

I didn’t blog the past two days not so much because I was fatigued, but because being fatigued and unable to do things that I could do relatively easily just a few days before was so upsetting. I was in a foul mood both Tuesday and Wednesday, and anything I tried to write would probably have read something like Catcher in the Rye meets A Clockwork Orange. And not in a good way.

But hey. I’ve made it through another few days of fatigue and for the moment I have a little bit of energy, so that’s nice. I still met some amazing people and got to experience beautiful Cambridge (even if only from the window of a taxi). And I learnt that even here, on the other side of the world, I’ve got people looking out for me (thanks Aurora fam).

Unfortunately, my experience at the group meeting on Tuesday has turned me off Cambridge (the university, not the place). I left that room feeling like there was no space for someone like me at Cambridge—someone who struggles with chronic illness and needs extra time/support sometimes. I left that room feeling like there was no way I could possibly cope with the workload of a postgraduate degree at Cambridge, and that somehow that was a personal failing. Like I said, it was not a good time.

But we’re in Oxford now, I have some Anglia Ruskin stuff to work on, I have plenty of time to rest and no meetings I need to get up for in the mornings, and in a little over a week I will be at home with my puppy dog and my car and my friends and my family.

This trip has been amazing, but these last two days knocked me around a bit, and I’m ready for a hug and a cup of Milo.

(Thanks Robyn for sharing your Vegemite this morning—it was just what I needed).

Una said my jumper was very Tom Baker. I was pleased.

Cambridge and surrounds

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Today was another big day. I had breakfast at Fitzbillies again with my roomie, then we parted ways—she headed off to a meeting and I wandered about doing some shopping.

At noon I met with Dr Anna Alexandrova from the Cambridge History and Philosophy of Science program. She invited me to attend a seminar on ethical use and disclosure regarding algorithms that may be discriminatory (a very similar vibe to the Algorithms of Oppression talk at Harvard but much more philosophically technical). It was great to sit in and listen but I think I’d be exaggerating if I said I understood even half of it!

Then it was back to my room for a little rest before our big London reception this evening. And while I was resting… I received my thesis results! Not too shabby for someone who didn’t do creative writing undergrad, I’ve gotta say. And the feedback I got on the fiction component was absolutely lovely. It was a very surreal feeling, sitting in a room in St Catharine’s College Cambridge, reading my Honours results. A very “what even is my life” moment.

So of course now I’m completely reconsidering everything about this tour and my future study direction. Now that The Academy has confirmed that I can indeed write fiction, there are some mighty fine MFA courses that are calling to me…

Late this afternoon we took the train to London. We stopped in at a sushi train on our way to our event, and spent ten minutes stuffing our faces before continuing on. We had a fancy pants reception at Australia House (Gringots Bank from the first Harry Potter film for those Harry Potter nerds following along at home). It was a stunning building, but unfortunately for security reasons we weren’t allowed to take any photos.

After the reception we had dinner at a nice burger joint and then hopped on the train back home. Overall, a full and satisfying day.

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St Catharine’s is gorgeous.

Today was fab.

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I had brunch at Fitzbillies down the road with one of the other Scholars, and it was delicious. And the coffee actually tasted like coffee, unlike whatever we had been drinking in the US.

At about noon my big day started in earnest. I set off in search of bridges.

My first stop was Mathematical Bridge, a gorgeous little wooden structure crossing the River Cam between the two halves of Queen’s College. I then walked back through Cambridge and stopped in at a cute little jewellery shop and the Cambridge University Press book shop before purchasing visitor’s entry to St John’s College to view the Bridge of Sighs. It’s a covered stone arch bridge which was built in 1831, and is named after the Bridge of Sighs in Venice.

I also stopped by the Round Church (it’s a church… that’s round), though I didn’t go in this time as I had other things I wanted to tick off my list. I climbed the bell tower of Great St Mary’s Church, from where I had clear views of King’s College to the west, Cambridge markets to the east, Trinity College to the north, and Corpus Cristi college to the south.

Then it was a short walk to our afternoon tea in Christ’s College, where we ate delicious snacks and sandwiches, and our host—Master of the College Jane Stapleton—let us sit in Charles Darwin’s chair and hold Alexander Todd’s Nobel Prize!

Two of the other Scholars and I ate dinner at the Eagle, the pub where Francis Crick and James Watson announced their discovery of DNA’s function in 1953. On the walk back to my accommodation at St Catharine’s College we passed the Corpus Clock, which was inaugurated by Stephen Hawking in 2008 (it features a little beastie atop the gold-plated main face dubbed ‘the chronophage’—literally “eater of time” in Greek, thanks Wikipedia—by the clock’s funder John C. Taylor).

Overall a very science-themed day! And I have been promised a visit to Einstein’s chalkboard when we are in Oxford. Excitement!

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Mathematical Bridge. Unfortunately I couldn’t cross it, but I still enjoyed admiring it from a distance!

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The Bridge of Sighs.

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View of King’s College from the roof of the Great St Mary’s bell tower.

 

Oh. And I learnt that one of the other Scholars on the tour is related to me. Hi Aunty!

Cambridge, Massachusetts / Cambridge, England

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We have arrived in the UK! In the space of about 12 hours we left one Cambridge and arrived in another. It is just as beautiful here as it was in Massachusetts, and I’ve already found a good local coffee shop.

I’m staying in St Catharine’s College with one of the other Scholars, as it’s closer to the campus and easier to manage with my fatigue. The others are not too far away, though, so even though we’re split across accommodation again it should still be fairly easy to meet up and do things together.

I don’t have anything particularly exciting to report about my travels across the ocean, but I do have an exciting discovery to share!

Anglia Ruskin University, which is also located in Cambridge, offers an MA in Science Fiction and Fantasy! And on the list of academics is none other than John Clute, co-founder of the Encyclopedia of Science Fiction and one of the big names in sf studies. AND they offer creative practice PhDs in Creative Writing! AND AND they have an open day on the 14th, my last day in Cambridge before heading across to Oxford, which also happens to be completely free of appointments! To say I am ridiculously excited is an understatement.

I’ll leave it there for tonight. I’m going to finish my cup of tea and make a few more notes on these amazing programs and then hit the hay. Hoping to go exploring tomorrow.

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The view from the coffee shop this afternoon. Note the pretty sundial on the wall.

Last night in the US

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Today has been a big and beautiful day.

I had breakfast at the hotel at a table by the window where I could soak up the morning sunlight. I had avocado and poached eggs on toast with a black coffee. It was good.

Towards the end of breakfast I was joined by one of the mentors, and we had a good chat about life and study and the future. I feel like everyone on this trip has become part of my family (yes… I know it’s a cliché), and I am going to miss everybody so much when we inevitably have to say goodbye and fly back to our respective corners of Australia.

After breakfast I caught an Uber with the other mentor and one of the other Scholars to Harvard, and killed a bit of time in Urban Outfitters until it was time for my appointment (that shop will be the death of me I swear, so much good fashion).

I was lucky enough to be invited to attend a seminar by Dr Safiya Umoja Noble about her book Algorithms of Oppression: How Search Engines Reinforce Racism. It was a fascinating talk, and the members of the audience had some very interesting questions which yielded very interesting answers.

In the afternoon I ducked across to MIT for a meeting with an academic administrator there, and found out a bit more about their HASTS program (History / Anthropology / Science, Technology and Society). Unfortunately she couldn’t answer all of my questions (like if I could squish science fiction in there somewhere under the anthropology or society banners), so I will have to email some of the professors from the department to find out.

By 4pm I was back at Harvard for a panel discussion that followed on from the seminar earlier in the day, entitled ‘Before Algorithms: A History of Bias and Oppression in Computing’. Again, fascinating, interesting.

Then it was back to the Science Center (where I spent most of my day yesterday) to attend a meeting of the Anthropology of Science working group which I had been invited to. One of the PhD students presented his research and received feedback from his peers (from other disciplines), a practice which is fairly common at Harvard, apparently. And if there’s no working group to suit your specific needs, you can just make one!

And then I finally caught up with the other Scholars for dinner. We went to the most delicious Mexican restaurant. It was the first time on the trip that I ate all of my food. It was fab (Border Café, if you ever end up in Cambridge, Massachusetts).

I finished up the day by packing my suitcase ready to fly out tomorrow, and am now lying in this super comfy hotel bed trying not to fall asleep while I type!

Harvard is working its way into my heart, I think. I really like the History of Science course, and think I could tailor it to my research interests fairly easily. I like Cambridge—there are so many trees and parks and the river is gorgeous and the sky is bright and clear. AND. AND. I FOUND GOOD COFFEE.

And the academics here are amazing, and so lovely and welcoming. I have really enjoyed my time here and am sad to be moving on.

I think, after a year or two, I may just have to apply to study here.

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The view from the fourth floor of the Wexner building at the Kennedy School, Harvard

Today was a good day

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I had a bunch of meetings at Harvard today, and all of them were fantastic. I didn’t really expect Harvard to be a good fit for me, but I am being very pleasantly surprised.

I began the day with breakfast at Tatte café with my current roomie (hi Faith!), then went to a meeting at the English department. The lady I spoke with was so lovely, and we had a good chat about the program and life in general. Like all of the people I met today, I hope we can stay in touch once this tour is over.

I spent the afternoon at the Science Centre, meeting with academics and program coordinators and current students. All of them were wonderful, and all of our conversations were stimulating, energizing, and inspiring. Professor Sophia Roosth even gave me a copy of her book! Our research interests are quite similar so I’m looking forward to reading it when I get home after these hectic few weeks.

The cold is still going strong but I’m continuing regardless. Harvard and surrounds are feeling like they could be home for a while, maybe. Stanford now has serious competition for top spot on my list!

I’m getting regular E30 and puppy dog updates from my friends at home, and I’m missing both car and doggo (…and friends) terribly. I’m still absolutely loving my edventure, but I’m looking forward to coming home and seeing all my family and friends and companion animals and inanimate objects.

In the meantime, I keep acquiring books (whoops!) which will need to be posted home so that my suitcase isn’t over-weight. Ahh the trials of being a bookworm.

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How gorgeous is this tree! It lives in a sunken garden bed which is hidden from view until you go right up to the fence. What a treat to see this in the middle of the lawn!

It has been a day

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Well, it seems I have a cold. I am not feeling very well and the fatigue is building again.

But I am still enjoying Boston. The weather is lovely at the moment—the air is brisk and there’s a low fog hanging over the city. The buildings here are beautiful. Some of them are clad in shingles and the neat rows remind me of the weatherboard houses in Vic Park back home. It’s nice.

We had a lunch at HUNAP (Harvard University Native American Program) today, where we heard about the services available to Indigenous students at Harvard and some of the courses taught there as well. Unfortunately I had to leave halfway through to have a lie down, but it was definitely still worth attending.

In the afternoon I stopped by the Coop (Harvard’s merch store—everybody here calls it the coop [like chicken coop] rather than co-op [like co-operative]) and then bounced around four or five different shops in search of new shoelaces for my boots. I had success just in time to jump on the shuttle back to the hotel!

The rest of the afternoon/evening was spent napping. I am taking a brief break from rest to write this blog post and do some admin tasks before my full day of meetings tomorrow. I might stop by the chemist in the morning for some cold and flu tablets to make my day more bearable.

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A nice view from my Uber this morning

Our Systems and Theirs

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Today we attended a symposium entitled Our Systems and Theirs: Indigenous Knowledge, Racial Identity, and Higher Education hosted at Harvard. We were joined by some Native American and Canadian students to discuss our identities and how we can exist as indigenous peoples in traditionally Western/European higher education institutions.

It was a wonderful day, honestly. I loved hearing everybody’s stories and making some new friends. One particularly bookish member of the Canadian party has promised to visit Perth one day, and I think I will have to return the favour! Perhaps in the meantime we can send each other book recommendations every now and then.

After the symposium a couple of the other Scholars and I found the cutest little basement café, where we had some delicious tea and soup and killed some time before the group dinner in the evening. We also took a wander through the Harvard Book Store and I fell in love with the place. It’s massive, and has an amazing selection of both new and used books. Pictured below is one that I picked up which I have heard many good things about—and which won both Hugo and Nebula awards. I’m excited to read it!

Dinner was fab. We ate at the Harvard Faculty Club, and the food was so good. There were vegetables! Vegetables!!

Everyone had a great time chatting and getting to know each other better. The camaraderie continued back at the hotel, with some Scholars playing a game or two of pool, and others of us just sitting around and continuing our dinner conversations.

Tomorrow we have a group lunch, but I’m going to head into Harvard early with my roomie for some breakfast and a wander around campus since I will miss the tour on Thursday (I’m visiting MIT!). There are two other bookshops I’ve been told are worth checking out, one of which is called Raven Books (my fave bookshop back home is Crow Books, so obviously I have to drop in).

But now, heat pack and bed. Goodnight!

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Binti by Nnedi Okorafor has won both Hugo and Nebula awards, and it’s only 90 pages long!

Hello Massachusetts!

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We have arrived in Boston (well, Cambridge, technically).

We left our New York accommodation at 8.30 this morning to avoid the complication of trying to navigate through the New York Marathon, and then had three hours to kill at the airport. Some of the Scholars found little nooks to nap in, while others amused themselves with comparing terrible coffees with worse ones.

I found a bunch of magazines with AI features and accidentally bought them. And also one on Mars (as research for the short story I’m writing).

We had dinner at a little Japanese restaurant—which was delicious—and then came back to our hotel for a debrief and a chat about the week to come.

Boston (Cambridge) is so pretty. It’s nice to be under the open sky again and surrounded by trees. And I’m looking forward to my Harvard meetings; I’ve also been invited to a seminar discussing how search engines reinforce racism. It should be interesting!

On Thursday I’m going to sneaky sneak over to MIT for a meeting about a super cool PhD program which mashes together History / Anthropology / Science, Technology and Society. Excitement!

Oh, and the fatigue is starting to subside. Hooray!

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Trees!! I am happy.

Last day in New York

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Today we attended the Ivy Native Council Fall Summit, which featured presentations and workshops on the theme of Expansion, Intervention, Refusal: Representing Indigeneity through Art in New York City.

I left at lunch time due to fatigue, but prior to that I got to chat with some lovely Indigenous students from all over the US about our experiences and our homes.

One student from Arizona showed me pictures of her home town—the landscape was gorgeous. The colours reminded me of Western Australia, but the topography was completely different. She showed me a picture of a cedar tree and the trunk looked very much like that of a bottlebrush, though the structure of the branches and leaves was very different.

I napped in the afternoon, and then a group of us went out to a Japanese restaurant a couple of blocks away for dinner. The food was delicious and made me miss all the amazing little Japanese places in Perth. I’m keen for Hakata Gensuke ramen when I get home!

Tomorrow morning we’re taking a short flight to Boston. It looks like it’ll be a busy week at Harvard but I’m hoping to cancel or reschedule a couple of my meetings so I don’t burn out.

I’m very glad I made it to Central Park yesterday. It’s actually made it easier to notice and appreciate what little greenery is scattered around the city.

Thanks, New York, and see you again.

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The opening presentation at the Ivy Native Council Fall Summit